Translations:Dave Johnson's Proletariat Protocol/19/en

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  • Exercise as you are able, but do not exercise to the point of extreme fatigue. http://blogs.als.net/post/Exercise-does-a-body-good-But-what-about-pALS.aspx Moderate exercise helps keep active the body's repair processes. But for someone with ALS, pushing beyond that into lactic acidosis is pushing into a regime that the body has lost the ability to compensate. .......The single most common anecdote among newbies is "a year ago I was running marathons, and now I can't walk without crutches, what happened?" That's not the most common anecdote you hear among heart attack or lung cancer victims. ALS is different from the customary couch potato degenerative diseases.
  • Get plenty of sleep. In order to survive ALS your body's repair mechanisms have to be allowed to function, and most repair happens during sleep. http://ens-newswire.com/2013/10/18/brain-cleans-itself-of-toxins-during-sleep/
  • If you're under a lot of stress, and if there's some way you can get out from under that stress, do it. Prolonged stress impairs your body's ability to repair itself.
  • Regarding Vitamin A (including retinoids) supplementation, there is conflicting information. Natural dietary carotenes aren't a problem.
  • Don't supplement with copper, and avoid foods high in copper such as shellfish. Don't use copper or brass cookware. (More on this subject later.)
  • Don't supplement with iron, unless prescribed by a medical doctor for treatment of anemia.
  • Don't supplement with "pills" that claim to increase SOD-1. Since wild-type (normal) SOD-1 can become misfolded (and therefore toxic)in sporadic ALS, such supplements are likely to make the disease worse.
  • Don't go berserk piling on antioxidant supplements, choose antioxidants carefully. A lot of patients have tried flooding their bodies with all kinds of antioxidants (out of desperation, not knowing what else to do), and that approach has a dismal track record of failure. There are theoretical reasons to believe that overdoing the antioxidants may even throw your body's ability to control oxidation out of whack leading to accelerated disease progression. Do however make sure you have adequate vitamin C intake.
  • Don't drink aspartame sweetened soft drinks. Most bodies are strong enough to handle that neurotoxin but yours may not be.http://www.als.net/forum/yaf_postsm387065_Glutamate-esp-biological-regulation-thereof.aspx#387065
  • Don't eat foods that are high in free glutamate flavor enhancers such as MSG, soy sauce, hydrolyzed vegetable protein, yeast extract, or aged cheeses such as Parmesan. Most bodies are strong enough to handle a sudden excess of glutamate but yours may not be. http://www.als.net/forum/yaf_postsm387065_Glutamate-esp-biological-regulation-thereof.aspx#387065
  • Avoid aluminum compounds. This means aluminum-based antiperspirants, alum as an additive to pickles, aluminum-based antacids, and the use of aluminum cookware where the food being cooked comes into contact with an aluminum surface.
  • If you are taking statin drugs, either stop or begin supplementing with plenty of CoQ10. If your medical doctor argues with you, tell the cuss that ALS patients don't die from heart attacks, you want high cholesterol to protect what's left of your nervous system. It should provoke an interesting conversation......... You need to find out NOW what your doctor does and doesn't know, and what conversations are and aren't possible. ALS therapeutics are a DIY project and the question is not who can do it for you, the question is who can provide useful support on that very personal journey.
  • If you're taking phytosterol nutritional supplements (esp. saw palmetto), stop taking them. Beta sitosterol does have certain health benefits, but over time it compromises brain health by substituting for cholesterol.